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Table 3 Interview Schedule

From: The information needs of women diagnosed with Polycystic Ovarian Syndrome – implications for treatment and health outcomes

Diagnosis of PCOS

Think back to when you first found out you had PCOS. Tell me about how you were diagnosed?

   • When did you find out?

   • Who told you?

   • Why do you think there was a problem/seek help in the fist place?

   • What did they tell you?

   • How do you feel about what you found out?

   • What happened next?

Could you tell me what you knew about PCOS when you were told that you had it?

   • Where did you get that information?

   • Who told you where to look for information?

   • Were you interested then in finding out more information?

   • Have you sought information since then?

   • At the time, what kind of information did you want to know?

Information about PCOS

What do you understand now about PCOS?

   • What do you think causes PCOS?

   • What are the symptoms and long term effects?

   • What kinds of treatments are there?

   • How do you feel about having PCOS now?

What information have you collected about PCOS?

   • What have you learnt from this information?

   • What did you do with this information

   • What did you like/dislike about this information?

   • What is the best way of obtaining information?

   • What format would you like information presented?

Outcomes/Lifestyle

Do you think that the information you've had about PCOS has helped you take better care of yourself? How?

   • How do you think your general health will be affected in the future?

   • What information have you had about how PCOS affects getting pregnant?

   • From this information how do you think PCOS will affect you chance of getting pregnant?

Are there things you would like to know about PCOS for the future?

Considering your life experiences, do you think you look for information in the same way as others?

If you could start over again:

   • Who do you think is best to give you information about PCOS?

   • Where would you go to look first for information if you had no guidance?

   • Why do you think that is a good source?

   • What would you do differently about getting your information about PCOS?

Is there anything else you think may be important in order to understand your experience with information about PCOS that we should discuss?