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Table 2 Focus Group Discussion (FGD) guide: Life with a Genital Fistula: Experiences among Women Seeking Treatment in Mulago Hospital, Uganda

From: “I am alone and isolated”: a qualitative study of experiences of women living with genital fistula in Uganda

A. Introduction/consent
  The discussion begins by introduction, giving information about the study to respondents and seeking consent for participation and recording voices.
B. Questions to guide the discussion: Use probes to ensure clarity
1 What are some of the reasons (causes) why women in this community may develop leakage of urine/faeces?
2 Can you give an account of life with a fistula from the time a woman in this community realizes that she is leaking urine and or faeces up to when she finally decides to seek medical help?
3 In what ways does leakage of urine affect a woman’s relationship with other people including her relatives, neighbours, peers and spouse when she has a fistula?
4 How does leakage of urine impact on a woman’s sexual and reproductive life in this community?
5 How does leakage of urine following fistula affect the marital rights and responsibilities that a woman should otherwise enjoy?
6 Now let’s talk about seeking medical care for women with fistula. Can you tell us how it is in this community? Kindly tell us if there are any difficulties and the measures women use to overcome the difficulties?
7 How does a woman feel or would feel if this hole is repaired successfully. How does repair influence her social, sexual, and psychological well being?
8 What message do you have for the pregnant women? Suggest what they can do to avoid this problem of fistula following delivery?