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Table 2 Study and participant details of the Breast and Cervical Cancer Studies

From: A qualitative exploration of cervical and breast cancer stigma in Karnataka, India

Parameter

Breast Cancer Study

Cervical Cancer Study

Location

Tertiary care hospital: St. Johns Medical College and Hospital, Bangalore, Karnataka

Community based: Bangalore Rural and Chikkaballapura Districts, Karnataka through collaboration with Cancer Care India (CCI), an NGO that provides cervical cancer education, screening, diagnostic and treatment services.

Data collection methods

- In-depth interviews

- Focus Group Discussions (FGD)

- In-depth interviews (IDI)

Participants

Inclusion Criteria

- Patients with a histo-pathologically confirmed diagnosis of breast cancer with early, advanced and metastatic disease, their caregivers, and healthcare providers

- Above age 18 and fluent in English, Kannada, or Tamil

- FGD inclusion criteria: Women eligible for screening (30–45 years, 46–60 years) and husbands of women in this age range

- IDI inclusion criteria: Women in the exposed villages who had undergone screening, frontline health care workers (physicians, nurses and community health workers), and community leaders (community day care workers, teachers, members of village government)

Sample size

Participants

Number of IDIs

Participants

Number of FDGs

Number of IDIs

Total number of individuals

Patients

27

Exposed Villagesb

Primary caregivers

22

Women

4

 

43

Screened women

 

6

6

Healthcare providers

10

Husbands

2

 

21

Unexposed Villagesc

Total

59

Younger Women

4

 

38

Husbands

2

 

18

Healthcare Providers

 

8a

10

Community Leaders

 

10a

11

Total

12

24

147

Data Analysis software

NVivo 9.2

NVivo 9.2 and Atlas Ti

  1. aJoint interviews with two or more respondents
  2. bExposed: where CCI implemented outreach programs
  3. cUnexposed: where CCI planned to conduct outreach programs but had not yet done so