Table 2 List of Topics
Personal information | Age, educational background, migrant status, age of migration, children. |
|---|---|
Consanguinity | Relationship to partner prior to marriage, marriage history, perspectives on consanguinity (disadvantages, advantages), consanguineous marriages in family and social environment, differences in perspectives among generations. |
Genetic risk | Knowledge, perspectives on genetic risk. |
Children’s health | Disease, diagnostic history, genetic background, living with a child with a disability/disease, mother’s and father’s ways of coping, experiences in health care. |
Genetic testing | Perspectives on testing. |
Reproductive options | The possibilities of PCS in the future: (1) not having children; (2) termination of pregnancy (TOP) after prenatal genetic diagnosis (PND); (3) in vitro fertilization (IVF) combined with Pre-Implantation Genetic Diagnosis (PGD); (4) in vitro fertilization with a donor egg cell; (5) artificial insemination with donor sperm (AID); (6) adoption, or; (7) not taking any special measures or preparing for possibly of having a disabled child. |