Skip to main content

Table 1 Demographic and clinical characteristics of women with endometriosis (n=423)

From: The Endometriosis Impact Questionnaire (EIQ): a tool to measure the long-term impact of endometriosis on different aspects of women’s lives

Characteristics   n (%)
Agea (years)   32.64± 8.38, (Range: 16-58)
Age groups Aged 16-24 75 (17.73)
Aged 25-34 186 (43.97)
Aged 35 and above 162 (38.30)
Country of birth Australia 313 (74.00)
Other 110 (26.00)
Country at time of doing the EIQ Australia 351 (82.98)
Other 72 (17.02)
Language is spoken at home English 418 (98.82)
  Other 5 (1.18)
Marital status Married 187 (44.21)
In a relationship 129 (30.50)
Never married 48 (11.35)
Single 45 (10.64)
Separated/Divorced 13 (3.07)
Widowed 1 (0.24)
Educational level Primary or high school 14 (3.31)
Lower secondary school 22 (5.20)
Upper secondary school 47 (11.11)
Vocational (e.g. TAFE) 79 (18.68)
Some college/university 42 (9.93)
Tertiary, undergraduate 131 (30.97)
Tertiary, postgraduate 76 (17.97)
Other 12 (2.84)
Employmentb Not employed 43 (10.17)
Paid work, full time 200 (47.28)
Paid work, part time 119 (28.13)
Home duties 47 (11.11)
Student, full time 30 (7.09)
Student, part time 22 (5.20)
Retired 3 (0.71)
Other 38 (8.98)
Pregnancy historyb Never pregnant 237 (56.03)
One or more children 126 (29.79)
Miscarriage or stillbirth 64 (15.13)
Currently pregnant 10 (2.36)
Delayed fertility Not applicable (never tried) 194 (45.86)
No 69 (16.31)
Yes 160 (37.83)
Age at onset of symptomsa (years)   16.35± 5.21, (Range: 8-42)
Age at first visit to doctora (years)   19.70±6.49, (Range: 9-43)
Age at diagnosisa (years)   24.65± 6.58, (Range: 12-43)
Delay in diagnosisa (years)   8.31±6.58, (Range: 0-28)
Endometriosis-related symptomsb (life time). Period pain 420 (99.29)
Fatigue 397 (93.85)
Bloating 386 (91.25)
Pelvic pain not related to periods 382 (90.31)
Ovulation/mid cycle pain 377 (89.13)
Pain during/after sex 354 (83.69)
Heavy bleeding 345 (81.56)
Irregular bleeding 271 (64.07)
Delayed fertility 158 (37.35)
Other 91 (21.51)
Endometriosis treatmentsb (life time) Pain killers 410 (96.93)
Surgical treatments 394 (93.14)
Hormonal medications 368 (87.00)
Complementary treatments 208 (49.17)
Hormonal IUD 175 (41.37)
Psychologist 120 (28.37)
Nutritionist 95 (22.46)
Physiotherapist 72 (17.02)
Sexual therapist 15 (3.55)
Other 48 (11.35)
Times presented to emergency department due to endometriosis Never 165 (39.01)
1-2 118 (27.90)
3-4 55 (13.00)
5-10 44 (10.40)
More than 10 41 (9.69)
Hysterectomy due to endometriosis No 376 (88.89)
Yes 47 (11.11)
  1. aMean±SD
  2. bParticipants were asked to tick all that apply