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Table 3 Disease biography: complaints, of anamnesis and health care relevant aspects

From: Rare genital malformations in women’s health research: sociodemographic, regional, and disease-related characteristics of patients with Mayer-Rokitansky-Küster-Hauser syndrome

Variable

Manifestation

Somatic complaints at the time of therapy admission (Multiple answers possible)

Primary amenorrhea

n=117 (91%)

Cyclic abdominal pain

n=19 (15%)

Failed cohabitation attempt

n=14 (11%)

No complaints

n=9 (7%)

Medical intervention before MRKHS diagnosis (Multiple answers possible) a

No intervention

n=82 (64%)

Stretching on one’s own

n=11 (9%)

Hymenal incision

n=16 (12%)

Hormonal treatment

n=15 (12%)

Other

n=8 (6%)

 Suspected diagnosis of MRKHS at the time of initial presentation at gynecologist (n=116)

n=68 (59%)

Age at diagnosis (in years)

Mean (Median)

16.21 (16)

Standard deviation (range (Min; Max))

2.71 (21 (2; 23)

Time elapsed between onset of first abnormalities and diagnosis (in months)

Mean (Median)

11.08 (2)

Standard deviation (range (Min; Max))

31.97 (200 (0; 200)

Time elapsed between diagnosis and surgery (in months)

Mean (Median)

3.24 (1)

Standard deviation (range (Min; Max))

5.18 (30 (0; 30)

  1. aDifference: no intervention vs. (multiple) various interventions: χ2(1)= 9.712, p= 0.0018