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Table 2 A presentation of categories, examples of citations and numbers of recording units in each category

From: Perceptions of care after end-of-treatment among younger women with different gynecologic cancer diagnoses – a qualitative analysis of written responses submitted via a survey

Category

Example, citations

All women

(n = 207)

Women diagnosed with cervical cancer (n = 130)

Women diagnosed with ovarian cancer (n = 57)

Women diagnosed with other gynecologic cancersa

(n = 20)

Recording units

n (%)

Recording units

n (%)

Recording units

n (%)

Recording units

n (%)

Unmet long-term supportive care needs

”Everyone ignores the child/infertility viewpoint, it’s not so fun to go from what I at least thought fertile to infertile. Psychologically this is a trauma, but it feels like no one wants to understand.”

“I think there’s a lack of a more holistic view of people in healthcare. The body is treated with such finesse, but the mental parts are left aside.”

“A lack of information I needed. In my case hysterectomy and I was shocked by the problems after the operation and regretted it immediately and still do.”

138 (66.7)

82 (63.1)

46 (80.7)

10 (50.0)

Satisfying long-term supportive care

”About 8 months after end-of-treatment I participated in a cancer rehabilitation group. We were a group that met about twice a week. Once a week we trained with a physiotherapist and once a week we had group sessions with counsellors. I thought this was incredibly good.”

“It has been very nice to have the same doctor during all my follow-up appointments. I’ve also been able to reach her via telephone when I have been wondering about things. Very good to meet a counsellor, someone external, to talk with – until I felt I was “done” with the trauma.”

54 (26.1)

35 (26.9)

8 (14.0)

7 (35.0)

Health care organizational difficulties

”I had 4–5 doctors during a one-year period and it felt very insecure and impersonal.”

“Help in hurrying up the healthcare would be needed. It shouldn’t take four weeks to get answers from a scan when they say it should take two weeks.”

58 (28.0)

39 (30.0)

14 (24.6)

5 (25.0)

  1. aOther = Endometrial (n = 16), pelvic (n = 1), and vulvar cancer (n = 3)