Concern | Example quotes |
---|---|
Taking medications, or taking additional medications (9 participants) | I don't like to take drugs. Just a personal preference. If I don't have to take pills, I don't like to take pills. (Kaitlyn, White, late 30s) I think if I weren’t on immune-suppressive therapy [taking Tamoxifen] would be more on the table. (Lucy, White, late 40s) |
Known side effects or unknown potential long-term health impacts (8 participants) | The side-effects on some of those drugs are awful. (Sharon, White, late 20s) I don't always trust that this stuff is safe because if it's fairly new, sometimes you don't know for ten years. So, I guess I'd be hesitant unless there was something that was tried and true and had been out for a while. (Anne, White, late 50s) |
Chemoprevention is too drastic or less definitive/proactive than preventive surgery (6 participants) | Chemoprevention seems awfully extreme. (Sharon, White, late 20s) [Surgery] is just more definitive. (Lainie, White, late 50s) |
Lack of chemoprevention information (4 participants) | If I start now, am I going to be taking it for the rest of my life? I don’t know. (Jojo, African American, late 20s) |
Doubts effectiveness of chemoprevention (2 participants) | It’s so unlikely to work, why put yourself through that? (Sharon, White, late 20s) From the research I’ve read, Tamoxifen is a maybe help… But it’s not like a, “You won’t get cancer if you take Tamoxifen.” (Marsha, White, early 40s) |
Chemoprevention will be like chemotherapy, or will negatively affect quality of life (3 participants) | I’m hypersensitive to [medications], so the idea of taking something that might not make me feel well…is it worth quality of life? (Marsha, White, early 40s) I’d probably be a little bit more concerned [about taking Tamoxifen] because I saw my mom have such troubles with it [after she had cancer]. (Kim, White, late 30s) |