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Table 5 Summary of themes including a description as well as a respondent’s representative quotation

From: The impact of COVID-19 pandemic on mental and physical wellbeing in women with fibromyalgia: a longitudinal mixed-methods study

Theme

Description

Representative Quote

Job loss

Resulted in a reduction or elimination of work

“Stopped working in March and only went back at the beginning of October. Even with unemployment, money has been tight”

Healthcare access/concern

Reduced access to healthcare due to in-person appointment restrictions and/or availability of healthcare staff

“I had limited access to healthcare”

Physical health concern

Increased concern about physical health

“Almost all my appointments are now telehealth, where I have no telehealth appointments prior to COVID-19. My chronic pain treatments were all canceled, as they were in person appointments for injections, medical massages and acupuncture. My health has definitely suffered as a result of COVID-19”

Social / family contact

Reduced contact with friends and family

“Not seeing my family; I isolated”

Financial concern

Stress related to finances due to COVID

“Stress over finances and fear of getting seriously ill”

Mental health concern

Increased mental health concerns during pandemic

“Covid has been the epitome of bad timing, and has affected my mental health most of all. Pain is pain, which is only so manageable, but just when I thought I had a handle on my mental health, Covid came in and reversed so much of my progress”

Remote Work

Resulted in working from home

“Working from home, paranoia about getting sick or bringing the disease home; Limited social activities”

Children's school / care

Reduction or elimination of childcare

“kids are doing a hybrid model at school with remote days and no buses which complicates work and logistics for everyday life”

Weight gain

Weight increases during pandemic

“I have gained some weight (from being less active)”

Reduced recreation

Reduced time spent doing recreational activities during pandemic

“Finances, job, friends, vacation”

Housing

Potential change to or loss of housing

“It is stressful because it may affect my healthcare and housing”

Financial improvement

Finances improved due to receiving unemployment

“Because I got pandemic unemployment for a while, I have more money usual”