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Table 1 Descriptive statistics of participants’ sociodemographic and self-reported lipoedema characteristics

From: Women with lipoedema: a national survey on their health, health-related quality of life, and sense of coherence

Variables

Frequency (n)

Percentage (%)

Age (years)

245

 

 18–39

16

6.5

 40–49

57

23.3

 50–59

97

39.6

 60–69

45

18.4

 70 and older

30

12.2

Educational level

245

 

 Mandatory/High school

64

26.1

 Upper secondary/University

181

73.9

Occupationa

244

 

 Working full-time

132

54.1

 Working part-time

38

15.6

 Studying

9

3.7

 On sick leave (wholly or partially)

33

13.5

 Unemployed

9

3.7

 Retired

48

19.7

Age at lipoedema onset (years)

245

 

 11 or younger

19

7.8

 12–17

99

40.4

 18–29

51

20.8

 30–39

26

10.6

 40–49

24

9.8

 50 or older

26

10.6

Confirmed diagnosis

244

 

 Yes

186

76.2

 No/Do not know

58

23.8

Age at diagnosis (years)

186

 

 12–29

3

1.6

 30–39

30

16.1

 40–49

52

28.0

 50–59

65

34.9

 60 or older

36

19.4

Lipoedema stageb

245

 

 Stage 1

23

9.4

 Stage 2

81

33.1

 Stage 3c

133

54.3

 Do not know

8

3.3

  1. a30 participants responded to more than one response option here. Among those, the most common combination (n = 7) included those working part-time and on sick leave part-time
  2. bParticipants who responded to being in more than one stage were then grouped into their most advanced stage
  3. cStage 3 also includes participants who reported being in stage 4 (n = 11), which was classified as lipoedema stage 3 with secondary lymphedema