Table 1 Determination of incident cases of uterine fibroids in The Health Improvement Network database
From: The reporting and diagnosis of uterine fibroids in the UK: an observational study
Uterine fibroids | Hysterectomy | Uterus-preserving procedures | Heavy menstrual bleeding | ||||||
|---|---|---|---|---|---|---|---|---|---|
Validation step 1: review of free-text comments for verification of Read codes | Event status | Probable cases | Non-cases | Probable cases | Non-cases | Probable cases | Non-cases | Probable cases | Non-cases |
Number of records | 500 | 149 | 51 | 200 | |||||
Percentage | 94.0 % | 6.0 % | 92.6 % | 7.4 % | 92.3 % | 7.8 % | 86.5 % | 13.5 % | |
Validation step 2: results of PCP questionnaires | Questionnaires sent | 200 | 50 | 10 | 50 | ||||
Valid questionnaires received | 176 | 10 | 34 | 3 | 8 | 1 | 38 | 6 | |
Incident cases of UFs | 164 (93.2 %) | 2 (20.0 %) | 10 (29.4 %) | 1 (33.3 %) | 5 (62.5 %) | 0 (0 %) | 7 (18.4 %) | 0 (0 %) | |
Weighted percentage of confirmation rates | 87.6 % | 1.2 % | 27.2 % | 2.5 % | 57.7 % | 0 % | 15.9 % | 0 % | |
Combined total (proportion of women correctly identified by Read codes) | 88.8 % | 29.7 % | 57.7 % | 15.9 % | |||||
Cohort size | 9380 | 11,002 | 3220 | 60,915 | |||||
Estimated number of incident cases in the cohort | 8329 | 3268 | 1858 | 9685 | |||||