Table 1 Interview guide
1.Could you tell me about yourself? in general your history (person family work) Could you tell me about how you find yourself today more situated in time |
2.Do you remember the day you were told about the disease, how it happened? What did you think, feel, do? How did you experience having this disease? What did it change in your daily life? How did you experience your treatments? Can you tell me about your treatment? (Chemotherapy, radiotherapy, surgery)? Apart from these treatments, have you been offered any other treatments (supportive care, NMIs, etc.)? Did this help you? Have you been offered a combination? 3. Have you ever participated in an association? What motivated you, why did you hear about it, why did you choose it, which association? What motivated you to join this association? Who told you about it? Why did you choose it? What does belonging to an association mean to you? How do you experience your association? Could you tell me about your participation, what you do? What do you think is your level of involvement? How has participating in an association changed the way you look at being ill? What has changed in your everyday life? your life and then your life as a patient? and how? relationship with others, identity, project? |
4. What place do you think you have in the lives of other patients? Do you feel you have a particular expertise within this association? What place do you think you have in the lives of your peers? |
5. If you were to advise one of your peers, what would you say? |
6. Can you give me a picture (and/or draw me sth) that could represent you at these different times? |