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Table 2 Shows the common initial codes, Higher level codes axial themes and the essential themes

From: Lived experiences of refugee women with vaginal fistula in Nakivale and Oruchinga refugee settlements, Isingiro District, Uganda

Primary codes (tally)

Secondary codes

Axial codes/Sub themes

Themes

How you got the problem /Causes:

Difficult delivery (I)

Prolonged labour (III)

Removed dead baby (I)

Obstructed labour

Stillbirth

Poor/no health facilities

Poor or no maternal health care services

After the operation (II)

Instrument delivery (I)

Instrumental

Cancer (I)

No screening services

No transport (II)

Far Health centre (II)

No roads (Fear to travel to Hospital (II)

No or poor roads

Far or no Hospitals, no staff to attend to them

Poor infrastructure

Rape (III)

Pierce private part using instruments (II)

Forced sex

Vaginal piercing

Rape

Sexual abuse

Onset

Seeing blood passing through my anus and vagina (I)

Seeing stool pass through my vagina (I)

Unusual experience

New experience

New experience

Sudden unexpected onset of blood (I)

Sudden onset of urine (II)

Unexpected

I cannot even tell what caused this problem

I was later old

Unknown problem

Effect

Living with family members and community

Husband abandoned me: (I)

Took my children away (I)

Hide/Isolate self from others (III)

No longer considered a family member (I)

Family neglect

Divorced

Neglected/Loss company

Divorced

Social discrimination

People abandoned me: (IIII)

Calling me bad names: (I)

People avoid me due to smell: (III)

Avoid people: (II)

People complain of bad smell: (I

Neglected

Waste of family money: (I)

Arrested because of mistaken identity: (I)

Increased expenses

No value in me: (I)

Problems double: (I)

Life becomes useless, not worth living (II)

Hell on earth: (I)

Physical shock: (I)

Mental shock: (I)

Shame: (I)

Sadness and guilt: (I)

Loss of self-worth

Hiding

suffering

Felt labelled

Labelled criminal

Guilt

Depression

Suicide

Depressed

Shame,

Emotional disturbances

Interference with sex: (III)

Mess in bed and clothing’s: (Terrible smell: (III)

Bad smell: (IIII)

The woman who defecate on herself: (I)

Feeling Dirty

Dirty

Deserted, Shunned, stigma

Experience during movement:

Difficult movement: (III)

Chest away by people because of bad smell: (III)

Abuse of being smelly: (II)

Perceiver: (I)

Abandoned

Insult

Neglected and Depression

Coping with economic and spiritual life

Difficult to do business: (Difficulty in working or maintaining: (III)

Fear of crowd: (I)

Stopped all social life: (I)

Collapsing business: (I)

Customers chest away by smell: (I)

Difficulty in getting a job: (I)

Difficulties in selling

Difficulties in getting and maintaining a job

Un-employment

Poverty and Dealing with difficulties for surviving

Change in eating habit: (I)

Increased demand for water and soap: (II)

Increase economic burden: (I)

Increased expenditure

Increased expenses

Life as a refugee:

Food ration not adequate: (I)

Miss hot meals served at the reception centre: (III)

Difficult to attain a ration card long bureaucracy: (IIII)

Difficult to stand online: (III)

Miss monthly food ration: (II)

Lengthy ration collection waiting time, Long refugee registration process, Long food distribution duration

Inadequate food ration

Long Bureaucracy

Expected life

Donation of pads: (III)

Help to get ration card: (I)

Help to get ration food: (II)

Hygiene need

Support

Survival

Coping

Privacy to clean-up myself: (II)

Not minding the smell: (III)

Drinking less water: (II)

Hiding

Adopting to smell

Coping

Pity

Coping

Going back to parents: (II)

Sympathy from other (IV)

Pity from people: (III)

Sympathy: (I)

Fear of praying with people: (I)

Sympathy from the community

Pity

Putting all my trust in God: (II)

Crying telling God: (I)

Increase church-going: (I)

Sympathy and trust

Religious

Empathy from Community

Feeling more religious